For the Reporter
Kent’s Susan Jorski recently met with state representatives from Washington and Oregon in Washington, D.C., to support research funds for tuberous sclerosis complex (TSC), a disorder that affects her 15-year-old son, Michael, a Kent-Meridian student and Special Olympian.
Jorski was among the many volunteers from throughout the country who made the visit to raise awareness and further the study for a cure for TSC, a genetic disorder that forms mostly benign tumors in major organs of the body.
“My son has them in his heart, brain and has skin manifestations,” Jorski said. “I was lucky enough to meet with Congressman Adam Smith (D-WA, District 9) during this trip, who has agreed to support us.”
In Jorski’s fourth year of making the trip to D.C., she “was lucky enough to meet with my congressman” for the first time.
Susan and Matt Jorski actively support regional TSC alliance efforts. Susan Jorski chairs the annual Step Forward To Cure TSC Walk. This year’s fundraising walk is scheduled for Sept. 21 in Seattle’s Seward Park.
To learn more or to donate, visit www.tsalliance.org/pages.aspx?content=104.
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